Welcome
To
I am often asked to describe the experience of
raising a child with a disability to try to help people who have not shared
that unique experience to understand, to imagine how it would feel. It’s like
this…
When you’re going to have a baby, it’s
like planning a fabulous vacation trip-to
After months of eager anticipation, the day
finally arrives. You pack your bags and
off you go. Several
hours later, the plane lands. The
stewardess comes in and says, “Welcome to
“
But there’s been a change in the flight
plan. They’ve landed in
The important thing is that they haven’t
taken you to a horrible, disgusting, fifthly place, full
of pestilence, famine and disease. It’s
just a different place.
So you must go out and buy new
guidebooks. And you must learn a whole
new language. And you will meet a whole
new group of people, you would never have met.
It’s just a different place. It’s slower
paced than
But everyone you know is busy coming and
going from
And the pain of that will
But…if you spend your life mourning the
fact that you didn’t get to
Emily
Perl Kingsley